Rare Diseases Coordination Center Support Unit
A support unit for the Rare Diseases Coordination Center has been established at Riga East Clinical University Hospital with the aim of improving the treatment and care of patients with rare diseases. In cooperation with the Rare Diseases Coordination Center BKUS and the Rare Diseases Cabinet PSKUS, the support unit will provide consultations with a doctor with competence in rare diseases, state-paid multidisciplinary consultations, molecular genetic examinations (BKUS), psychologist (BKUS and PSKUS) and nutritionist consultations (BKUS).
The support unit will provide services for adults with rare diseases (referral from a specialist or GP with an ORPHA code or a rare patient ID card is required to receive the service) or a suspicion of a rare disease (referral from a specialist or GP).
Functions of the Rare Diseases Coordination Center Support Unit:
- to improve the treatment and care of rare disease patients at Riga East Clinical University Hospital;
- to coordinate the flow of patients with rare diseases – by providing diagnostic opportunities and organizing multidisciplinary councils;
- to promote the improvement of the Latvian rare disease patient register;
- to develop methodological management of rare diseases, creating a unified approach to the treatment of rare diseases;
- issuance of an identification card for rare diseases to patients with rare diseases.
Rare Diseases Coordination Center Support Team
The head of the support unit of the Rare Diseases Coordination Center, dr. med. Viktorija Ķēniņa:
“By raising the profile of rare diseases, focusing on the challenges that patients face in their daily lives, we will be able to achieve the Support Unit’s main goal of improving the patient’s quality of life.”
Rare Diseases Coordination Center Support Unit Coordinator: Sandra Milta
Contact information: email@example.com; phone: 67042537, mob. 27404219
Opening hours: every working day from 9:00 to 15:00.
Doctor with competence in rare diseases: dr. Linda Kundziņa
Resident doctor in the field of endocrinology with competence in rare diseases (RSU, RAKUS).
Trainee doctor at the Emergency Clinic (RAKUS). Lecturer at the Department of Internal Medicine, Riga Stradins University. In 2017, she graduated from Riga Stradins University, obtaining a doctor’s degree. Trained at Semmelweiss University Hospital in Budapest (2016) as well as at Uppsala University Hospital at the Center of Excellence for Neuroendocrine Tumors (2019). Regularly attends and participates in conferences, congresses and courses organized by the association with the results of clinical cases and research. Co-author of internationally cited publications. Member of Latvian Association of Endocrinologists, European Association of Endocrinologists, European Association of Cardiologists and European Association of Young Endocrinologists.
Outpatient receptions take place on Fridays from 12:00 to 14:00.
To sign up for the visit, please call the outpatient clinic reception by phone (+371) 67000610. Outpatient clinic reception opening hours: weekdays 8:00 – 17:00.
A referral from a GP or specialist suspected of having a rare disease marked “consultation with a rare disease specialist” or a rare disease decoded with an ORPHA code and the indication “internist” are required. If the referral contains an indication for “dynamic monitoring”, then the referral to a specialist will be valid for a long time.